{"id":603,"date":"2017-09-04T07:22:28","date_gmt":"2017-09-04T07:22:28","guid":{"rendered":"http:\/\/www.uscrfuganda.org\/?p=603"},"modified":"2024-01-24T09:07:20","modified_gmt":"2024-01-24T09:07:20","slug":"my-burden-is-my-purpose-without-it-i-wouldnt-be","status":"publish","type":"post","link":"https:\/\/www.uscrfuganda.org\/?p=603","title":{"rendered":"\u201cMy burden is my purpose. Without it, I wouldn&#8217;t be.\u201d"},"content":{"rendered":"<p>\u201cMy burden is my purpose. Without it, I wouldn&#8217;t be.\u201d \u2015 Solange nicole<\/p>\n<p>My name &#8220;Tusuubira&#8221; has a story. This is a story a baby born in a community where people living with sickle cell are stigmatized and are given &#8220;dates of death&#8221; . It is often said that if you have sickle cell you will die at 2 years, before 5 years, before 10 years, before 20 years ,or before some year.<\/p>\n<p>My mother named me &#8220;Tusuubira &#8221; which means &#8220;we hope&#8221; as a way of instilling hope in herself and those around her that I would not die to become a statistic like 90% of the other babies born to Sickle Cell in Uganda who don&#8217;t make it past their 5th birthday.<\/p>\n<p>This &#8220;hope&#8221; has been my driving force to make change in the way people perceive Sickle Cell and those living with it through Uganda Sickle Cell Rescue Foundation<\/p>\n<p>I hope that you will join me in this fight against sickle cell disease in Uganda, Africa and the world at large.<\/p>\n<p>For Together we can fight against Sickle Cell .<br \/>\n#sicklcellawareness #MWF2017 #YALI2017<\/p>\n<p><iframe title=\"Sharif Tusuubira Kiragga\" width=\"640\" height=\"360\" src=\"https:\/\/www.youtube.com\/embed\/9ZVdZiOJrG4?feature=oembed\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" referrerpolicy=\"strict-origin-when-cross-origin\" allowfullscreen><\/iframe><\/p>\n<p>&nbsp;<\/p>\n<p><a href=\"https:\/\/youtu.be\/9ZVdZiOJrG4\" target=\"_blank\" rel=\"noopener\">&nbsp;<\/a><\/p>\n<p>&nbsp;<\/p>\n","protected":false},"excerpt":{"rendered":"<p>\u201cMy burden is my purpose. Without it, I wouldn&#8217;t be.\u201d \u2015 Solange nicole My name &#8220;Tusuubira&#8221; has a story. This is a story a baby born in a community where people living with sickle cell are stigmatized and are given &#8220;dates of death&#8221; . It is often said that if you have sickle cell you [&hellip;]<\/p>\n","protected":false},"author":9,"featured_media":0,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_eb_attr":"","_monsterinsights_skip_tracking":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":""},"categories":[1],"tags":[],"class_list":["post-603","post","type-post","status-publish","format-standard","hentry","category-uncategorized"],"jetpack_sharing_enabled":true,"jetpack_featured_media_url":"","_links":{"self":[{"href":"https:\/\/www.uscrfuganda.org\/index.php?rest_route=\/wp\/v2\/posts\/603","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.uscrfuganda.org\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.uscrfuganda.org\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.uscrfuganda.org\/index.php?rest_route=\/wp\/v2\/users\/9"}],"replies":[{"embeddable":true,"href":"https:\/\/www.uscrfuganda.org\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=603"}],"version-history":[{"count":1,"href":"https:\/\/www.uscrfuganda.org\/index.php?rest_route=\/wp\/v2\/posts\/603\/revisions"}],"predecessor-version":[{"id":1291,"href":"https:\/\/www.uscrfuganda.org\/index.php?rest_route=\/wp\/v2\/posts\/603\/revisions\/1291"}],"wp:attachment":[{"href":"https:\/\/www.uscrfuganda.org\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=603"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.uscrfuganda.org\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=603"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.uscrfuganda.org\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=603"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}