OBJECTIVE: TO PROMOTE INCLUSION OF PEOPLE LIVING WITH SICKLE CELL IN COMMUNITY ACTIVITES From an unpublished study carried out by the USCRF in 9 schools in areas of Mukono district indicated that 90% of the secondary school students believed the children with sickle cell disease should not be in school. This was further concretized in another study in Lusazze a kampala suburb where 68.3% of the respondents indicated that persons living with sickle cell cannot work and they wouldn’t…
Continue ReadingAwareness and Advocacy
OBJECTIVE: TO ENSURE A REDUCTION IN THE NUMBER OF CHILDREN BORN WITH SICKLE CELL IN UGANDA. Sickle cell has been one of the serious diseases but with less attention in the country. Therefore the biggest numbers of people both in urban and rural areas have little or no knowledge about it. They don’t know how it’s acquired which has led to its multiplication. Sickle cell screening wasn’t known to the biggest population. Under this initiative we move to communities and…
Continue ReadingEconomic Empowerment of families affected by Sickle Cell disease
OBJECTIVE: TO CONTRIBUTE TO THE ALLIVIATION OF POVERTY AMONG PEOPLE LIVING WITH SICKLE CELL Sickle Cell management and care has a big financial burden to the affected families. This burden is as a result of the frequent hospitalizations of the persons living with sickle cell. To the Care-takers /family members there is loss of productive time due to work absenteeism which leads to loss of employment in most cases. Our economic empowerment program enables us to promote poverty alleviation…
Continue ReadingSickle Cell Management , Treatment and Research
OBJECTIVE: TO IMPROVE THE QUALITY OF LIVES OF PEOPLE LIVING WITH SICKLE CELL In Uganda 25, 000 babies are born annually with sickle cell disease. Sadly 70-90 % die before their 5th birthday. And those who survive go ahead to suffer from the overwhelming effects notably stroke (6%), physical disability (2%) and blindness etc and some of them have little knowledge about the disease. They think their children are bewitched and they are hidden in their houses so that they…
Continue ReadingPartnerships and linkages
OBJECTIVE: TO FOSTER INNOVATE PARTNERSHIPS TO STIMULATE POLICY, LAWS AND ENCOURAGE COMMUNITY We have established partnerships with Ministry of Health, health facilities, schools and tertiary institutions, media houses, churches and mosques, Buganda kingdom, Centenary Bank, Business people among others. Under this initiative, we write to various bodies requesting for partnership with them such that their engagement contributes to our services these bodies make any contribution that they can towards our implementation. For example Pearl fm, Delta TV and Salam Tv…
Continue ReadingTraining in sickle cell disease
OBJECTIVE: TO PROVIDE AWARENESS AND INFORMATION ABOUT SICKLE CELL DISEASE IN UGANDA. In Ugandan communities, people have little or no knowledge about sickle cell disease. They have so many myths about the disease. This includes even some of the medical personal especially in the rural areas. Due to this situation, Uganda sickle cell Rescue Foundation together with the Ministry of health started by training counselors in sickle cell. Over 50 counselors were trained and these help out in our awareness…
Continue ReadingScreening and Testing
OBJECTIVE: TO ALLOW PEOPLE TO KNOW THEIR SICKLE CELL GENOTYPES/STATUS. The biggest population in the country doesn’t know its genotype. This is manifested during the outreaches and research that we make. Most people who are asked whether they know their genotype give a negative response. We offer free sickle cell screening during our community activities and on every Wednesday at our office. This aimed at promoting exclusive awareness of Sickle Cell. When people test they are ultimately informed about their…
Continue ReadingFundraising
OBJECTIVE: TO MOBILIZE FUNDS FOR THE USCRF ACTIVITIES Sickle cell is a serious burden in Uganda though it has been having minimal attention. As an organization we carry out a number of activities to help overcome this but we are limited by funds.So we come up with fundraising strategies to help us continue doing what we stand for. We have companies that help us donate money to run our activities like Hotel Africana and BMK group of companies, Roofings…
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