This month on September 8, Uganda will join the rest of the world in celebrating the International Literacy Day. It also happens to be a month in which Sickle Cell Awareness is commemorated. Several studies have investigated the spectacle of literacy from the perception of patients’ interactions in the health care setting, the alienation of patients because of their low literacy skills, the difficulty of patients in navigating the health care system, the quality of the communication between doctors and…
Continue Reading“My burden is my purpose. Without it, I wouldn’t be.”
Posted on by Daniel Odur
“My burden is my purpose. Without it, I wouldn’t be.” ― Solange nicole My name “Tusuubira” has a story. This is a story a baby born in a community where people living with sickle cell are stigmatized and are given “dates of death” . It is often said that if you have sickle cell you will die at 2 years, before 5 years, before 10 years, before 20 years ,or before some year. My mother named me “Tusuubira ” which…
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Whats Up Kansas City? Interview with Sharifu Kiragga Tusuubira from Uganda Sharifu,(ED of USCRF) is a part of the 2017 Mandela Washington Fellows.
Posted on by Daniel Odur
https://youtu.be/WgcmT9q_4Q8 Whats Up Kansas City? Interview with Sharifu Kiragga Tusuubira from Uganda Sharifu is a part of the 2017 Mandela Washington Fellows. The Mandela Fellows are on a educational journey for a six-week Civic Leadership Institute at Kansas State University. Throughout the course of the Institute, the Staley School will facilitate opportunities for cultural exchange and leadership development to advance the work of each Fellow by growing their capacity to lead change upon return to their home countries. Sharifu a…
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UGANDA SICKLE CELL RESCUE FOUNDATION NEWSLETTER 2nd QUARTER
Posted on by Daniel Odur
UGANDA SICKLE CELL RESCUE FOUNDATION NEWSLETTER 2nd QUARTER Uganda Sickle Cell Rescue Foundation (USCRF) a registered Non-profit Organization working to promote Sickle cell awareness and prevention while improving the quality of life of people living with Sickle cell Disease. ACTIVITIES IMPLEMENTED HOSPITAL VISITS In total we made 3 hospital visits (sickle cell clinics) to Mpigi health centre, 7 visits to Nsambya and 7 visits to Mulago for counseling and sensitization. Information shared included hygiene, adherence to drugs, nutrition,stigma,self-esteem how sickle…
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A Mother’s View on Sickle Cell : by Edith Kibira- USCRF
Posted on by Daniel Odur
For a woman joy is being a mother to a healthy son/daughter. But what if you are told that your child has sickle cell genes at six months what would you do? I am a mother of three children; two boys and a girl were both boys are sicklers. When my first born was diagnosed with sickle cell disease, I was perplexed. I had never heard anybody or even interacted with somebody who had sickle cells. I could not…
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Disability Rights for Inclusive communities.
Posted on by Daniel Odur
We are working with district local governments to promote inclusion of people living with sickle cell in community activities. Given the stigma and social discrimination people living with sickle cell disease in Ugandan communities it is incumbent upon us to promote their inclusion in community initiatives. We are currently working with the Rubirizi District sickle cell and physical disability association in this initiatives.
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Why Banana ?
Posted on by Daniel Odur
Bananas rank highest amongst the most important food crops in Uganda. Annual production is currently estimated at 8.45 million tons, accounting for 15% of total world banana output. In Uganda, over 7 million people including 65% of the urban population depend on the crop as their staple. It is estimated that 75% of the farmers grow the crop on 1.3 million hectares. Most of this production is for local consumption, the country having the highest consumption rate worldwide (per capita…
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Family Economic Empowerment Phase 1
Posted on by Daniel Odur
Located along Gayaza road our Sickle Cell family forum is working to set up a demonstration farm sitting on quarter acreage of land donated by Mrs. Winfred Lalani. Under this project we are working with AGT Laboratories to provide disease free Banana Planting Materials. We opted for tissue culture planting material mainly because it offers pest and disease free materials; offers uniform growth which ultimately increases yield; offers early maturity of the crop; enables round year planting as seedlings can…
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