This month on September 8, Uganda will join the rest of the world in celebrating the International Literacy Day. It also happens to be a month in which Sickle Cell Awareness is commemorated. Several studies have investigated the spectacle of literacy from the perception of patients’ interactions in the health care setting, the alienation of patients because of their low literacy skills, the difficulty of patients in navigating the health care system, the quality of the communication between doctors and…Continue Reading
“My burden is my purpose. Without it, I wouldn’t be.” ― Solange nicole My name “Tusuubira” has a story. This is a story a baby born in a community where people living with sickle cell are stigmatized and are given “dates of death” . It is often said that if you have sickle cell you will die at 2 years, before 5 years, before 10 years, before 20 years ,or before some year. My mother named me “Tusuubira ” which…Continue Reading
Whats Up Kansas City? Interview with Sharifu Kiragga Tusuubira from Uganda Sharifu,(ED of USCRF) is a part of the 2017 Mandela Washington Fellows.
https://youtu.be/WgcmT9q_4Q8 Whats Up Kansas City? Interview with Sharifu Kiragga Tusuubira from Uganda Sharifu is a part of the 2017 Mandela Washington Fellows. The Mandela Fellows are on a educational journey for a six-week Civic Leadership Institute at Kansas State University. Throughout the course of the Institute, the Staley School will facilitate opportunities for cultural exchange and leadership development to advance the work of each Fellow by growing their capacity to lead change upon return to their home countries. Sharifu a…Continue Reading
UGANDA SICKLE CELL RESCUE FOUNDATION NEWSLETTER 2nd QUARTER Uganda Sickle Cell Rescue Foundation (USCRF) a registered Non-profit Organization working to promote Sickle cell awareness and prevention while improving the quality of life of people living with Sickle cell Disease. ACTIVITIES IMPLEMENTED HOSPITAL VISITS In total we made 3 hospital visits (sickle cell clinics) to Mpigi health centre, 7 visits to Nsambya and 7 visits to Mulago for counseling and sensitization. Information shared included hygiene, adherence to drugs, nutrition,stigma,self-esteem how sickle…Continue Reading
For a woman joy is being a mother to a healthy son/daughter. But what if you are told that your child has sickle cell genes at six months what would you do? I am a mother of three children; two boys and a girl were both boys are sicklers. When my first born was diagnosed with sickle cell disease, I was perplexed. I had never heard anybody or even interacted with somebody who had sickle cells. I could not…Continue Reading
Family Economic Empowerment Phase 1; Located along Gayaza road our Sickle Cell family forum is working to set up a demonstration farm sitting on quarter acreage of land donated by Mrs. Winfred Lalani. Under this project we are working with AGT Laboratories to provide disease free Banana Planting Materials. We opted for tissue culture planting material mainly because it offers pest and disease free materials; offers uniform growth which ultimately increases yield; offers early maturity of the crop; enables round…Continue Reading
Over the last three years, we have been intensely focused on the discrete problems faced by the sickle cell disease sufferers and their families most notably stigma, discrimination, extreme poverty, broken families and unemployment. These key areas are impediments to envisioned improved quality of life of our people. There has been substantial progress in each area. But if we are going to achieve inclusion of the people living with sickle cell then there is more need for change. USCRF is…Continue Reading