Blog – Uganda Sickle Cell Rescue Foundation

The 5th Annual Sickle Cell Conference 2019

Posted on February 14, 2019 by UGANDA SICKLE CELL RESCUE FOUNDATION

Literacy, key to Sickle Cell Awareness and Prevention

Posted on September 7, 2017 by UGANDA SICKLE CELL RESCUE FOUNDATION

This month on September 8, Uganda will join the rest of the world in celebrating the International Literacy Day. It also happens to be a month in which Sickle Cell Awareness is commemorated. Several studies have investigated the spectacle of literacy from the perception of patients’ interactions in the health care setting, the alienation of patients because of their low literacy skills, the difficulty of patients in navigating the health care system, the quality of the communication between doctors and…

“My burden is my purpose. Without it, I wouldn’t be.”

Posted on September 4, 2017July 23, 2018 by UGANDA SICKLE CELL RESCUE FOUNDATION

“My burden is my purpose. Without it, I wouldn’t be.” ― Solange nicole My name “Tusuubira” has a story. This is a story a baby born in a community where people living with sickle cell are stigmatized and are given “dates of death” . It is often said that if you have sickle cell you will die at 2 years, before 5 years, before 10 years, before 20 years ,or before some year. My mother named me “Tusuubira ” which…

Whats Up Kansas City? Interview with Sharifu Kiragga Tusuubira from Uganda Sharifu,(ED of USCRF) is a part of the 2017 Mandela Washington Fellows.

Posted on July 24, 2017 by UGANDA SICKLE CELL RESCUE FOUNDATION

https://youtu.be/WgcmT9q_4Q8 Whats Up Kansas City? Interview with Sharifu Kiragga Tusuubira from Uganda Sharifu is a part of the 2017 Mandela Washington Fellows. The Mandela Fellows are on a educational journey for a six-week Civic Leadership Institute at Kansas State University. Throughout the course of the Institute, the Staley School will facilitate opportunities for cultural exchange and leadership development to advance the work of each Fellow by growing their capacity to lead change upon return to their home countries. Sharifu a…

UGANDA SICKLE CELL RESCUE FOUNDATION NEWSLETTER 2nd QUARTER

Posted on July 11, 2017July 12, 2017 by UGANDA SICKLE CELL RESCUE FOUNDATION

UGANDA SICKLE CELL RESCUE FOUNDATION NEWSLETTER 2nd QUARTER Uganda Sickle Cell Rescue Foundation (USCRF) a registered Non-profit Organization working to promote Sickle cell awareness and prevention while improving the quality of life of people living with Sickle cell Disease. ACTIVITIES IMPLEMENTED HOSPITAL VISITS In total we made 3 hospital visits (sickle cell clinics) to Mpigi health centre, 7 visits to Nsambya and 7 visits to Mulago for counseling and sensitization. Information shared included hygiene, adherence to drugs, nutrition,stigma,self-esteem how sickle…

A Mother’s View on Sickle Cell : by Edith Kibira- USCRF

Posted on July 4, 2017July 11, 2017 by UGANDA SICKLE CELL RESCUE FOUNDATION

For a woman joy is being a mother to a healthy son/daughter. But what if you are told that your child has sickle cell genes at six months what would you do? I am a mother of three children; two boys and a girl were both boys are sicklers. When my first born was diagnosed with sickle cell disease, I was perplexed. I had never heard anybody or even interacted with somebody who had sickle cells. I could not…